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  Eosinophilic esophagitis is a life changing disease that unfortunately is becoming increasingly common due to allergic diseases.   One out of 3,000 children* suffer from this disorder (Source: CHOP).  The House Resolution 296 was passed and the 3rd week of May is now National Eosinophil Awareness Week.

Below, are the premier websites recommended.

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These are the new diagnostic codes for eosinophilic disorders, and will be used in the coming months.  Thanks to everyone who wrote letters to politicians to make this happen.
530.13 - eosinophilic esophagitis
535.7 - eosinophilic gastritis
558.41 - eosinophilic gastroenteritis
558.42 - eosinophilic colitis

1. The Children's Hospital of Philadelphia. 
2. www.cincinnatichildrens.org
3. American Partnership for Eosinophilic Disorders www.apfed.org
Phone # 713-498-8216  View 'Just a Glimpse' Video
4. Tube Feeding
Oley Foundation: www.oley.org or call 800-776-OLEY
5. North American Society for Pediatric Gastroenterology, Hepatology & Nutrition (NASPGHAN) www.naspghan.org or call 215-233-0808
6. National Organization of Rare Disorders
7.  Cured Foundation  Campaign Urging Research for Eosinophilic Diseases.  Call Ellyn at 847-793-0071
8. www.thriverx.net Strap wraps
9. Washington D.C. Area Eosinophilic Connection (WAEC)
email: waec-owner@yahoogroups.com
website: http://washingtoneos.org

**This listing does not imply any endorsement by or affiliation with PAK.

Disclaimer: The opinions and stories on this site are not necessarily those of Protect Allergic Kids.  Our site is intended to offer a means for people to share their ideas and views.  PAK is not a professional or medical organization.  It is a group of parents sharing information and supporting each other.  The discussions, meeting minutes, handouts, guest speakers, agendas, and other products of our support group do not constitute medical/legal advice and should not be relied upon as such.  Always discuss individual health questions and medical issues with a qualified personal physician.
Does your child have Eos?
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* Symptoms of E.D.

  • nausea or vomiting
  • diarrhea
  • poor growth or weight loss
  • stomach or chest pain
  • reflux that does not improve with treatment
  • difficulty swallowing
  • poor appetite
  • food gets stuck in the throat
  • delayed emptying of the stomach
  • bloating
  • malnutrition
  • difficulty sleeping
  • back pain

* You need only one symptom for reason to look into the disease.  You can only be diagnosed via biopsy thru endoscopy.

Source: The Terrific Tale of Teddy The Tummy book.
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Interview with Dr. Furuta-Leading Gastroenterologist for Eosinophilic Disorders
To help this find a cure for this medical condition, PAK has donated:
$300 to CHOP in 2007
$300 to Cured in 2010
$100 to Apfed in 2010
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