EOSINOPHILIC DISORDERS
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  Eosinophilic esophagitis is a life changing disease that unfortunately is becoming increasingly common due to allergic diseases.   One out of 3,000 children* suffer from this disorder (Source: CHOP).  The House Resolution 296 was passed and the 3rd week of May is now National Eosinophil Awareness Week.

Below, are the premier websites recommended.

Latest News
Extreme Food Allergies:Life without food
Gene Site Found for Food Allergy
Insurance Cuts Off a Child Fighting for Life
Mom Helps Others Who Have Son's Illness
Wall Street Journal Article

These are the new diagnostic codes for eosinophilic disorders, and will be used in the coming months.  Thanks to everyone who wrote letters to politicians to make this happen.
530.13 - eosinophilic esophagitis
535.7 - eosinophilic gastritis
558.41 - eosinophilic gastroenteritis
558.42 - eosinophilic colitis

Resources
1. The Children's Hospital of Philadelphia. 
2. www.cincinnatichildrens.org
3. American Partnership for Eosinophilic Disorders www.apfed.org
Phone # 713-498-8216  View 'Just a Glimpse' Video
4. Tube Feeding
Oley Foundation: www.oley.org or call 800-776-OLEY
5. North American Society for Pediatric Gastroenterology, Hepatology & Nutrition (NASPGHAN) www.naspghan.org or call 215-233-0808
6. National Organization of Rare Disorders
7.  Cured Foundation  Campaign Urging Research for Eosinophilic Diseases.  Call Ellyn at 847-793-0071
8. www.thriverx.net Strap wraps
9. Washington D.C. Area Eosinophilic Connection (WAEC)
email: waec-owner@yahoogroups.com
website: http://washingtoneos.org


**This listing does not imply any endorsement by or affiliation with PAK.

Disclaimer: The opinions and stories on this site are not necessarily those of Protect Allergic Kids.  Our site is intended to offer a means for people to share their ideas and views.  PAK is not a professional or medical organization.  It is a group of parents sharing information and supporting each other.  The discussions, meeting minutes, handouts, guest speakers, agendas, and other products of our support group do not constitute medical/legal advice and should not be relied upon as such.  Always discuss individual health questions and medical issues with a qualified personal physician.
Does your child have Eos?
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* Symptoms of E.D.

  • nausea or vomiting
  • diarrhea
  • poor growth or weight loss
  • stomach or chest pain
  • reflux that does not improve with treatment
  • difficulty swallowing
  • poor appetite
  • food gets stuck in the throat
  • delayed emptying of the stomach
  • bloating
  • malnutrition
  • difficulty sleeping
  • back pain

* You need only one symptom for reason to look into the disease.  You can only be diagnosed via biopsy thru endoscopy.

Source: The Terrific Tale of Teddy The Tummy book.
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Interview with Dr. Furuta-Leading Gastroenterologist for Eosinophilic Disorders
To help this find a cure for this medical condition, PAK has donated:
$300 to CHOP in 2007
$300 to Cured in 2010
$100 to Apfed in 2010
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